We had our friends take some new photos of Lucy. It has been a while since we have taken any. There has been some time, some healing and the injections done in December. Lucy is finally feeling more like herself since doubling up on her folic acid. I was so pleased to see these pictures when they were sent over. Her smile and expressions show how happy and confident she is feeling. I had the thought; this is what we had hoped for. We wanted her to be happy as well as the progression stopping and the reconstruction that took place. I am confident we made the right choice going forward with the surgeries. On a whim we brought Jack with us to take photos and thought if he cooperates great if not no big deal. I love the pictures of her with Jack, she truly loves him and find such joy in his companionship.
I sent these photos onto Dr. Siebert and he thought she looked so good. He also said he would like to do another surgery. There are some minor things that he feels like he could improve for her and do better on. My stomach sank a little reading that he wanted to do another surgery. Not only was I mentally thinking the last one was it for a while I just know the financial side of it. We aren't in a position to pay for another surgery right now and insurance will be very tricky with our new changes. I feel bad that I worry so much about the logistics of making it happen. I wish we were millionaires that could just say no big deal and pay out of pocket for surgery after surgery for her until she is happy. I had told Lucy I sent the pictures to Dr. Siebert but almost didn't want to tell her his response. I didn't want her to become self-conscious about the changes he would want to make. I decided to let her read the email. She shrugged her shoulders and later told me that she thought it was interesting that he said that. She said a few weeks ago she started having thoughts about doing another surgery. Thoughts to be open to doing another one if needed. She was mentally done after her last surgery, and we all agreed to take a break. The email made sense of those thoughts she had been having. We are going up to see Dr. Siebert in a few weeks and we will discuss this all with him. We will have to find a way to make this happen if necessary. Navigating insurance another time and being flexible if the timeline doesn't go as planned. If there is anything I have learned through this all is if it is meant to happen there will be a way. I have to have faith that it will all work out.